This is a building that we spend a lot of time at. Tonight was a TS support meeting and it also where our Neurologist is. Rob and I really enjoy going to the meetings and seeing other families that live with the disorder. Tonight our Epilepsy specialist was talking and it was extremely informative. We found out more about side effects to some of the medications Luke is on and it was not very reassuring. We also learned some new info. about focal seizures, which may be why Jake does not sleep well at night. It is always scary and overwhelming when we come home from these meetings. Sometimes it is nice to survive day to day and live in our own little bubble. These meetings are a reminder of the severity of the disorder and the fear is always a little more tense. Knowledge is key, but it also scares me to death.
Friday, August 28, 2009
August 20 TS Support Meeting
This is a building that we spend a lot of time at. Tonight was a TS support meeting and it also where our Neurologist is. Rob and I really enjoy going to the meetings and seeing other families that live with the disorder. Tonight our Epilepsy specialist was talking and it was extremely informative. We found out more about side effects to some of the medications Luke is on and it was not very reassuring. We also learned some new info. about focal seizures, which may be why Jake does not sleep well at night. It is always scary and overwhelming when we come home from these meetings. Sometimes it is nice to survive day to day and live in our own little bubble. These meetings are a reminder of the severity of the disorder and the fear is always a little more tense. Knowledge is key, but it also scares me to death.
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