Long Day

Unfortunately, we have to do a lot of tests at Loma Linda because of Tuberous Sclerosis. A MRI is one of those tests we have to have done yearly to monitor the growths in the kids brains. Yesterday was Lu's turn. Technically the process in simple, give Lu some chlorophyll to knock him out, do the test, then he wakes up and we go home. Now, that would be too easy for us. We get to Loma Linda to check in and the authorization is not on file. We sit and wait for an hour and they finally let us go down to the MRI. The IV and falling asleep was easy, the actual MRI went smoothly, then came recovery. Luke got wheeled to the recovery area where the nurse told us to try and let him sleep for an hour before waking him up. Rob and I waited the hour and Lu did not budge. We then waited two hours and he did not budge. By the third hour the nurse was starting to look nervous and called a doctor to come check him out. During the fourth hour, the nurse said we would give him one more hour and then call the doctor again. I have to admit that I knew he was sleeping peacefully and just had to let the medicine wear off, but a part of me was feeling panicky. I kept going back to a little over a year ago when I stood over my son in the ICU and his body was lifeless. At that time I feared he would never wake up. Thankfully an hour and a half later my boy finally sat up and opened his eyes. Relief!!!!! We were at Loma Linda from 9:30 in the morning until 5:30 that evening and Rob and I were exhausted. The stress and and fear of dealing with this disorder is tiring. A routine test is never just routine. I love my kids and accept that God chose Rob and I to parent our kids, but some days are definitely harder than others.